May 29, 2013
It has been a few eventful days.
Respiratory Development: I had a few rough days after my first attempt at taking my vent out. It tooks me 3 days to get back to where I was before the extubation and then 3 days to grow and get stronger until this morning when I just pulled my ET tube out myself - the docs said "let's go ahead and see if he is telling us something." Sure enough I was and now I am on only a nasal cannula that still gives me respiratory support but there is not a big tube down my throat.
Mom and Dad can now hear me cry which is novel right now...in a few months at 3am, they will probably long for the tube.
Growth: I am up to 0.98KG or 2.2lbs - I am huge!
Feeding: I am now 100% on breast milk, no more IV supplements! They took out my last IV and now everything goes through my feeding tube or meds go in orally. I am a free man!
So now I just need to grow a bunch and let my lungs finish developing and start feeding not out of the tube. Still a ways to go but definetly progressing.
Thanks for all your prayers - they have helped so much!!!
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