May 23
There is a saying in the NICU..."one step forward, two steps back for a while, then 1:1 and then you will feel only small steps forward." We'll, the last few days it felt like only progress-gaining weight, going down in vent settings, like it was uphill. Then, yesterday they tried to take me off the vent. I went onto another machine called a CPAP which meant no tube in my throat but tubes in my nose which allows me to do more of the breathing work. Well, I really tried but it just exhausted me. It was like doing an iron man and I was more in marathon shape. So they had to put me back on the vent at 12am. Argh! Thy day that this happens often, it takes one or two times to actually be able to get off the vent. Then today all my stats are a mess because it is like the day after a marathon- I am really tired! So I have to get another blood!transfusion, they stopped my feeds until tonight. I have had to get lots off blood drawn and so didn't have very good sleep except when mom and I kangarooed for 2 hours!!!
On a positive note, I hit 0.9kg today or 2.01 lbs!!!!
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