People have asked me as I go back to work: how do you do it? It must be so hard. To them I respond. I don't think about what I don't have anymore very much. It is much more joyful to think about what I do have:
A loving husband. Over the past 6 months, Hoyt and I have gotten into maybe 3 disagreements. The rest has been nothing but pure love. So many people get divorced over an experience like this, it has made us stronger.
Two beautiful sons. Miles is obviously a blessing and miracle but Townes through all of this has been so patient and kind. He makes me laugh almost daily. What a blessing it is to have him as my son.
Family Support. Moms, Dad, Sister and Brothers who have been there with us through all of this. They have been our rocks and we are so blessed to have such a loving family.
A Good Job and Great Team at a Great Company: I get to have the pleasure of working and getting paid well at a company that saves kids like Miles everyday. They gave me 5 months off, 3 months paid to get Miles adjusted. Yes, to be independently wealthy would be AWESOME, but I am so appreciative of the work I do have.
My Health: I have had some bouts with illness over the past several years but in general I am in pretty good health. I am so thankful that God has given this body and soul to live in this world with.
A New Understanding: I was not very religious before this journey but this journey was indescribable and so surreal. The connectedness of each moment was nonsensical. It was like when you see the Rockies for the first time and you are in awe at the beauty and you realize that happenstance could not have created that kind of beauty. I am so blessed to have had an experience that leaves me no choice to believe.
Saturday, September 14, 2013
September 14, 2013 - 7 Weeks Old, Mom Back to Work, Doing Great
September 14, 2013
Well, Mom only as time to write for a few minutes every now and then now that she has gone back to work. I went to the pulmonologist this past week and they are trying me off of the oxygen! I have to be on another monitor for 24 hours to make sure everything is ok but if so, no more oxygen!
Latest update overall:
Weight: 10lbs 3oz
Height: 21 inches
HC: 15.5 inches
Still on the monitor but that is ok and now off of oxygen for the time being.
Developmentally: The state offers a free service for all babies who were born medically fragile like me. They will send a physical therapist evaluator to your home to determine if I need services and if so, the services are provided at your house at a very low rate. The good news is that I am developmentally on track for my adjusted age. They track my development from my due date until I am 2. I am a little behind in my fine motor skills but everything else looked aok!
Sleeping: I have not graced my parents with more than 5 hours of sleep yet but I find that generous. I still have some reflux and gas issues so that keeps them up at night.
Mom went back to work and things are crazy. Two kids I guess is a lot more difficult to one. Everything is on a strict schedule. Bath time, dinner time, story time, all have to be in sync so that the house can go to bed by 930pm.
We have been doing lots of fun things on the weekends though. Lots of hiking. I have already been on 3 hikes! Lots of cooking and then of course lots of hanging out with the neighbors.
Life overall is pretty great for Team Sloan!
Well, Mom only as time to write for a few minutes every now and then now that she has gone back to work. I went to the pulmonologist this past week and they are trying me off of the oxygen! I have to be on another monitor for 24 hours to make sure everything is ok but if so, no more oxygen!
Latest update overall:
Weight: 10lbs 3oz
Height: 21 inches
HC: 15.5 inches
Still on the monitor but that is ok and now off of oxygen for the time being.
Developmentally: The state offers a free service for all babies who were born medically fragile like me. They will send a physical therapist evaluator to your home to determine if I need services and if so, the services are provided at your house at a very low rate. The good news is that I am developmentally on track for my adjusted age. They track my development from my due date until I am 2. I am a little behind in my fine motor skills but everything else looked aok!
Sleeping: I have not graced my parents with more than 5 hours of sleep yet but I find that generous. I still have some reflux and gas issues so that keeps them up at night.
Mom went back to work and things are crazy. Two kids I guess is a lot more difficult to one. Everything is on a strict schedule. Bath time, dinner time, story time, all have to be in sync so that the house can go to bed by 930pm.
We have been doing lots of fun things on the weekends though. Lots of hiking. I have already been on 3 hikes! Lots of cooking and then of course lots of hanging out with the neighbors.
Life overall is pretty great for Team Sloan!
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